Baby Lucy

Tony and I have some dear, dear friends that we've known for years, but have become so close with since our move to Virginia. (Erin and Phil, who have Parker, one of Lakely's BFFs.) Erin's sister recently had to deliver her daughter, Lucy, @ 36 weeks. Her and her husband were aware from early on that this precious baby had some things going on with her that made her special. On the 20 week ultra sound, it was confirmed that she had a cleft palate and some swelling in the abdomen. The pregnancy continued on without any complications until her 36 week ultrasound. That is when the doctors realized that Lucy had not grown in almost four weeks. They decided to go ahead and induce Kate hoping that they could help this baby stay alive. She was born later that day, and seemed healthy except for the lip. She didn't even have to go to the NICU nursery. They continued running tests on her and discovered at the end of last week that she was blind in her left eye. That was hard to swallow, but certainly doable knowing that they at least had there baby girl here on Earth. As the weekend ended and this week began, Lucy started taking a turn for the worst. Test results came back and concluded that Lucy had a fatal genetic disorder known as Trisomy-13. She passed away in her mommy's arms last night.

I have been beside myself all day, praying for Erin, her sister, the family and sweet baby Lucy. I know she is now in God's hands and in a much better place, but the thought of losing a child is unbearable. If you're reading this, take a look at your precious baby and think how blessed you are to have him or her in your presence. Thank God that you got to leave the hospital with your newborn and pray for those that don't.